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Mitochondrial Myopathy (Muscular Distrophy) and Statins

PostPosted: Thu Oct 12, 2006 11:02 am
by harley2ride
It took nearly 3 years, multiple doctors, and over $50,000.00 out of pocket, to find out that I have Mitochondrial Myopathy, and that the statin drug Crestor, awoke it from it's sleep, and causing me to get worse and worse with time. I have two specialists now that agree that statins can and do aggrivate, jumpstart, and or lead to Mitochondrial Myopathy, which may or may not have ever had any affect on me had it not been for the statin drug. But there is absolutely no doubt, that the statin made me much worse. Now here is the scary part. The mitochondrial flaw is passed down from a mother. So if you have brothers, and they take statins, there is a very high risk that they could come down with this as well. So, if you have been fighting muscle pain for more than two years, and you have not had a muscle biopsy done, you should talk to a Neurologic specialist who knows about statin injury and myopathy's, and see if you should have a muscle biopsy (which is the only way to detect this). My doctor with the MDA, was able to diagnose me, even before he got the biopsy results, based upon my symptoms. But the biopsy was necessary to determine the exact nature of my problems, as there are various types of Mitochondrial Myopathy.

And hey DOC. If I mis-stated anything here, or left anything out, please feel free to add corrections and additional information. My doctors can't tell me how long it will take this disease to ravage me, but from my experience over the past three years, I'm guessing I only have a few decent years left, and then a hand full of disabled years before I croak. Pretty sucky, considering that 3 yrs ago, at age 47, I was outworking 20 yr olds, and strong as a horse. Now I'm more like a lamb... Just hope this helps someone.