Right now I can't walk.

A forum to discuss personal experiences of Muscle Pain associated with statin drug use.

Postby pmgamer18 » Sun Nov 07, 2010 12:33 pm

Thank you Nancy sorry about your husband and I hear you and know just what your saying. Today is a better day and I am walking around the house with out the walker. I am doing more walking today then normal. But this time I am not going to keep doing it until I feel pain.

I am done for the day so far not extra pain so I hope this works out we will see tonight and in the morning.
Phil
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Postby vicki » Sun Nov 07, 2010 8:17 pm

Like I siad I did have for years something like tennis elbow, hurt like hell. My legs, the lumps are still in the front of my legs below the knee. I believe my tendons tore. I have so much damage going on 15 yrs. now. I also developed while on Statins cancer CLL, cancer of the blood, my belief is my CLL was caused by statins. I had such major breathing problems, hurt all over on and on like everyone else when your body is so worn down and inflamation cancers is bound to come. That is what I believe and no one will ever convince me it wasn't the Statins. Along with that I developed Type 2 diabeties, severe breathing problems, major muscle and nerve damage. We all have so many problems and the drug co.'s know what is happening to us and don't seem to care. I tried co-q 10 and am eating right because of the cancer also and nothing seems to help. No test still show anything or Dr.'s refuse to believe you and say or you'll be ok. I think they just don't want anything to do with us, becasue they don't know what to do for us.
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Thanks for your commments Allen

Postby Nancy W » Sun Nov 07, 2010 8:38 pm

I, too have some funny lumps around that hip I was referring to. I have to wear warm pajamas to bed and socks on my feet, or I wake up in a lot of pain. And even with that, I am waking up with pain some nights. Last night, since we changed to daylight savings time, I stayed awake through the one o'clock hour twice, then finally hauled myself out of bed and sat up for three more hours reading and on the computer. I can't take pain medicine, and antiinflammatories do nothing...sometimes homeopathics help. I am listening to some CD's of Jack Kornfield on the combination of meditation and neurobiology. They are interesting and Kornfield, a noted Buddhist monk and the teacher of heart centered meditation, is talking about being aware enough to embrace pain, rather than run from it...I am down to no pharmaceutical options, I am hoping that the supplements will eventually lead to fruther return to health, and I am working on the idea of embracing this pain in the way Kornfield is talking about. It opens a door to a new way of thinking about it, anyway.

I will say that spacedoc.net has gone a very long way toward keepingme sane over the last 16 months! Thanks to all of you!
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Postby lars999 » Mon Nov 08, 2010 9:58 am

Good Morning Folks!!

I too had "tennis elbow" kinds of pains in left arm before and after stopping Lipitor, sometimes severe. Each and every attachment point for ligaments and muscles would ache and be very tender to touch. Only thing that helped was careful massage of each and every sore spot. Now that the extent and severety of Lipitor-induced pains in left arm are finally dissapating somewhat, so is the "tennis elbow".

Keeping each and every muscle, ligament, joint, that was/is affected adversely by Lipitor, warm is proving to be another consistancy for me.

Now that I am able to do enough physical exercise to get sore muscles, joints, etc. I am getting additional confirmation that these pains, sorenesses really are different -- they respond to ibuprofin, Aspercreme, etc., just like they always have. I now feel even more confident in ascribing the pains, etc., that are not responsive to these treatments, to be those from Lipitor.

Lars
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Postby pmgamer18 » Wed Nov 17, 2010 2:37 pm

Hi everyone good news things are getting better I am getting stronger but still have pain. I am walking 5 min.'s at a time with out using my walker for a total of 30 min.'s /day. Yesterday I started doing some Extercising Arms and legs.

I still have more pain at night but by the time I eat in the morning I am feeling better with the pain and albe to do the exercising and walking.

I walk for 5 min.'s every 90 min.'s.
Phil
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Postby lars999 » Wed Nov 17, 2010 4:09 pm

Hello Phil!!

Glad to hear things are improving for you. Walking about 5 minutes without cane was about as much as I could do a little over 5 months ago. Thought I would never be hiking again. FINALLY, I started improving fairly rapidly, still at much lesser intensity than only a few years ago.

It took me over 3 months of arm exercises before I started seeing any real improvement. Like with legs, lately improvements are coming more rapidly.

Not something for the impatient, I am still waiting for my arms and legs to "regress" back to my chronological age.

Congrats,
Lars
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Postby pmgamer18 » Wed Nov 17, 2010 5:13 pm

I have some pain in my left shoulder but most of it is in my lower back, hips and upper legs. I just started doing this walking and exercise last Monday.
Phil
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Postby pmgamer18 » Thu Nov 18, 2010 11:12 am

I just don't under stand all this after feeling stronger with less pain. Walking and doing some very light exercise.

This morning I am in a lot of pain and can't walk easy with my walker.

So now what Dr.'s say I need to walk 30 min's a day but doing this to me is making the problem worse.

I just don't see this getting better if when I try to exercise I get set back like this.
Phil
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Postby Allen1 » Fri Nov 19, 2010 7:16 am

Hi there Phil,

what is happening to you is the same as what most of us went through (and still do but not as severe).
As time goes by, things will get a little easier and you will see an improvement in both stamina and pain, the problems are that while getting there, you will often find that its like going 2 steps forward and 3 steps back, then you can go for days that are good only to be followed by days that are bad.

There are so many things that taking statins can do to people that it is truly frightening, a lot of the problems seem to be unrelated till you see how they work, even your skin can change, it can lose its elasticity, become itchy and even feel different etc.

It is also amazing how someone will mention a problem and you realise that you had or still have the very same thing, these problems are often overtaken by something else that is more of a problem at the time and the previous problems get waylaid.

I can understand the doctor wanting to keep you mobile and as long as you are at least getting up now and then for the bathroom or to put the kettle on etc, it will stop you from stiffening up. You will get stronger and the pain will ease off, but its a waiting game with a lot of ups and downs. Some people have got back some normality after a few months while others take a lot longer.

Some days you will also find that you can do a lot and feel OK only to find that you have actually overdone thing and spend the next few days recuperating, we have all done that and quite a few times too (you already found that out) :(

Don't give up as things do get a bit easier, it just takes a lot of time to get there for many of us ;)

All the best,
Allen :)
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Postby pmgamer18 » Sat Nov 20, 2010 9:58 am

Dr.'s can hand out Statin Drugs like it's candy yet yesterday the FDA pull Darvocet the only pain pill I can take that dose not make me feel sick. Now what can I do for the pain I am in I had Heart Bypass Surgery 2 yrs ago in the hosp. they tired every kind of Pain med there is for my pain.

After being in a coma 13 weeks I had to be opened up 5 x's due to infections and they put me in a coma becuse they could not close me up until the blood thinners were out of my body.

I ended up with a huge bed sore on my back side and needed pain meds for this when I got out of ICU. The only one that worked was a shot I can't remember the name. But they could not let me go home until they found a pain med I could take that agreed with me and it was Darvocet.

Here is what I found as to why they pulled Darvocet.
http://www.latimes.com/news/nationworld ... 1927.story
Phil
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The FDA's decision, based on data showing a risk of serious heart rhythm abnormalities
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Postby vicki » Sat Nov 20, 2010 10:36 am

I can’t believe they can pull Darvocet and other pills off the market just like that but like you said still hand out Statins like they were candy. Even wanted Statins put in our water so they could kill or damage more people.

I am so sorry.

Tues. I went to my doctor with my ever lasting statin damage…. This time lung problems again, can’t hardly breath and still trying to work, spitting up blood too. I took all my medical records, outlined out so she could see just what statins did to me. Showing before I started taking Statin drugs (bus physicals for work and 2 slight breathing problems in 12 years.) I also took the study I was in with UCSD Statin Study group, headed by Beatrice A. Golomb, MD. PHD and this statin study Statins and Myoglobin: How muscle pain and weakness progress to heart, lung and kidney failure by Stephanie Seneff :
http://people.csail.mit.edu/seneff/statins_muscle_damage_heart_failure.html
I think these two articles tell it all. All my doctor did is look at the papers for about 1 minute and then hand them back to me. How are we suppose to get any help when doctors are still in disbelief, won’t study the side-effects, don’t seem to care? I think it is terrible how some doctors treat us, so uncaring and won’t listen. We pay money for this?
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Postby pmgamer18 » Sat Nov 20, 2010 10:50 am

I guess as far as Dr.'s go I am lucky both my Family Dr. and my Heart Dr. agree whats wrong with me is from the Statin Drugs and are treating me for it with.

•Ubiquinol Capliques Featuring Kaneka's Qh (400mgs) 3x’s/day mercola.com.
•Lecithin 1200 mgs 3 caps 2x’s/day.
•Acetyl-L Carnitine 500 mg 3x’s/day.
•Alpha Lipoic Acid 250 mg/day.
•Krill Oil capliques 1,000 mgs. 2 with food morning mercola.com.

I am getting better but I am told I need to walk 30 min.'s per day even if it's only 2 min's at a time. And I am told to do some light exercise for my legs and arms.

Problem is when I do this I end up back in very bad pain that night or the next day why is this.

I keep thinking I need to see a Dr. that treats people for Statin Drug damage but how do you find out and what kind of Dr. dose this.

Phil
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Postby lars999 » Sat Nov 20, 2010 1:21 pm

Vicki,

I have had same experience with doctors re statins as you describe.
"All my doctor did is look at the papers for about 1 minute and then hand them back to me. How are we suppose to get any help when doctors are still in disbelief, won’t study the side-effects, don’t seem to care? I think it is terrible how some doctors treat us, so uncaring and won’t listen. We pay money for this?"

That puts those doctors on my "enemies list". What does that mean in practice?

1) I beleive nothing from doctors I vist, when the talk about statins. I generally counter most everything they say. ALL statins are on my DO NOT GIVE!!! list. That alone gets their attention!!

2) I no longer follow any doctor's medical advice, unless I have researched it and concur. In other words, ALL doctors are reduced to advisors. They will not control my life!!

FYI: I have at least one friend that has quit visiting doctors at all, preferring to educate herself about things medical and be her own doctor. I am part way down that path myself. These persons have what it takes to bring themselves up to the knowledge level of GPs and perhaps even some specialists.

3) I will assist any statin user in learning about the nasty adverse side effects of ALL statins. Nearly always this leads to them quitting statins -- total is well into double digits. I feel really good about "rescuing" every single individual from the nasty fate of statins -- these are all persons that really should not have been given statins, based on the various major clinical trials (but NOT on what drug companies, or their lacky-whacky doctors, claim). So far these persons have all been late 60 or women, some both, that is, persons that ALL clinical trials have shown DO NOT BENEFIT from statins.

4) I talk about my nasty experience with statins and tout books by Uffe Ravenskov, Malcom Kendricks, Duane Graveline, as well as Beatrice Golumb's medical publications, etc., etc.

5) I talk up Kilmer McCully's work on homocysteine, Linus Pauling's work on vitamin-C use in countering ateriosclerosis, and the emerging understanding that statins work, for persons that already have had a heart attack, because of currently ill-defined "anti-inflammatory" properties, NOT because of drastically, dangereously lowering of cholesterol and lipoproteins.

No victimhood for me again!!
Lars
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Postby pmgamer18 » Sat Nov 20, 2010 2:13 pm

Ok after much searching and posting at forums I found this paper by Spacedoc.com about Pain Relief and Exercising. I need to show this to my Dr. and try going on Ultram 300mg A stronger tramadol. In his paper he says the following that shows why I have a problem with more pain walking and trying to do light exercise.
http://www.spacedoc.net/pain_relief_vital_statin_damaged
=============================
Meanwhile multi-disciplined research teams are working out the details of mitochondrial repair and maintenance. Some of this new research centers on the benefit of exercise which stimulates mitochondrial genesis.

This can be very misleading. I can say from experience that regular exercise such as walking is counterproductive in these cases of statin associated muscle damage. The exercise merely throws additional work on the remaining intact muscle fibers causing excess strain and increased pain. This is why only the very special non weight-bearing exercise of water aerobics has much to offer here. No pain management program, in my opinion, is complete without it.

Phil
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Postby lars999 » Sat Nov 20, 2010 2:15 pm

What Allen wrote above about his personal experiences applies to mine, with only minor differences.

I especially note his words about things other than muscle and cognitive effect. I had some skin problems that steadily got worse and would not respond to any routine treatments. Once I stopped Lipitor, they went away nearly completely in following few weeks. Recently, a much less serious rash of same appearances and locations appeared. This "new rash" responded nicely to routine, OTC treatments.

Lars
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Postby pmgamer18 » Sat Nov 20, 2010 2:54 pm

Well I need some thing for the pain and need to try water exercising.
Phil
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Water aerobics

Postby Nancy W » Sat Nov 20, 2010 8:50 pm

Do deep water aerobics where you are buoyed up by a flotation device so you are truly non-weight bearing. Work up slowly, midn your fatigue, and pay attention to pain and back off if you have some. Don't add flotation (resistance) devices to your feet, or webs to your hands to start...just build up slowly and stretch gently at the end of each session.

I love water aerobics...even if I am still not where I was pre-statins.

Check out my post on the half life of statins...

Nancy
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Postby pmgamer18 » Sun Nov 21, 2010 12:42 pm

Thanks Nancy I have read all your posts get help. I will do this my wife was thinking to go to the Old persons club her in town don't take a class yet but go to the class as a drop in cost is only $6 /time. How many days a week should I start with.

I am feeling better from the exercise I did that set me back the first of the week. Before doing them I was thinking I could start cutting back on the pain pills.

I feel doing this in the water I will be better off and be able to get off the pain pills I don't like taking them.
Thanks for all you do Phil
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Postby pmgamer18 » Tue Nov 30, 2010 2:18 pm

I am going on Ultram/Tramadol 50 mgs to start for pain. I am on Celebrex 2x's per day and the Darvocet I am on 5 days ago the FDA pulled it.

I have so dam much pain even Darvocet did not help taking it 3 x's per day.

I just got back from seeing my Dr. he keeps telling me I need to walk for exercise I have to use a walker now do to Statin Drug damage. The more I try the worse I get it's like I am between a rock and a hard place.

I hope the Ultram/Tramadol works I start on it tomorrow. And will start to try walking in deep water in a Therapy heated to 98 I hope I can do this with out having anymore set backs.

I got this E news letter the other day it's the only thing on the web I found that talks about Pain Relief Vital for those Damaged by Statins

http://www.spacedoc.net/pain_relief_vit ... in_damaged
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Postby pmgamer18 » Wed Dec 01, 2010 11:03 am

I took the Ultram/Tramadol 50 mgs this morning at 5 am just the walking I did going to the Dr. yesterday I was up most of the night in pain. I need help here the Ultram/Tramadol 50 mgs is hardly helping me with the pain. The last pill of Darvocet I took was last night 11pm when I went to bed.

Do you guys take the Ultram 2 to 3 x's per day 50 mgs with the darvocet I was on this 3x's / day. Is 50 mgs of Ultram as strong as Darvocet/Acetaminophe/Propoxyphe 650mg/100mg Po Tab.

I must say I am a bit upset the way this is working I was sure from reading spacedoc.com news letter for pain do to statins I would have less pain and be able to try walking in the water at the old persons club.

I call my Dr. he said if I have a problem call him he did the scripe for 3x's per day but told me only take one. So I do have more if he says to take more.
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