australian attitudes and facts

bradadelaide45 · Joined: 10 Jan 2009 Posts: 7

Hi its been quite a long time since i posted although i come and browse often. my name is brad aged 47 Adelaide Australia, i have written my sory before but will give a quick rundown. Took simvastatin for 3 years, pain episodes over this time but never linked to statins!! terrible pain after 3 years in legs arms neck chest, i quit the statins in sep 2008 i am still in pain most days and exercise intolerant. i would like to just share in what i have been up to .
I have searched the Australian medical Journal and been in touch with the Australian medical Asosc. Their stand on statins are all glowingly positive (all reports in the Australian medical journal seem to be positive and in the disclaimer area they have been supported payed for by pharmacutical companies. (merck sharpe and Dhome) In yet searching the australian theraputic goods i find that there has been over 5800 reported cases of negative side affects from statin use!!As you can probably guess from this accordingly most doctors and specialists i have come into contact with are very reluctant to admitt that the statins cause this much pain and disability and they clutch at msidiagnosis such as fibromalgia, arthritis chronic fatigue to name a few. I incidently wrote to every member on the board of teh AMA and have never recieved a reply. I also wrote to the minister for health both state and federal and their oppositions. alos little action but at least a couple of replys that they would look into it.
I would like to know of any other statin victims here in australia so as we can share details and meybe work together to achieve recognition, perhaps rehinbursment, and to help warn others of te very real danger, please feel free to message me back in this forum or directly at bradankor@hotmail.com thankyou for taking the time to read this and i hope 2011 to be a better one for all of us

BDavis · Joined: 28 Jan 2007 Posts: 52 Location: USA

Brad,
It breaks my heart to read your post, for two reasons, one because it seems that Australia is just another blind country of doctors under the influence of the Big Pharm group. And two because you are so young to be suffering like you are. I'm 53 and hate the fact that my 70 yr old friends (I live in Fl, retirement haven) all can out do me with energy and mind clarity.
Good luck hooking up with a fellow Australian and pooling your energy towards educating the medical field.
BTW, did you have problems with the resent flooding?
Take care,
BeLinda

cjbrooksjc · Joined: 13 Dec 2006 Posts: 1136 Location: Fort Worth, Texas

Brad:

Google this report:
"Progressive myopathy with up-regulation of MHC-I associated with statin therapy" (written 2006)

From: The Centre for Neuromuscular and Neurological Disorders, Queen Elizabeth II Medical Centre and University of Western Australia.

Not all Aussies are out of the loop on this topic.

Best,

Brooks

bradadelaide45 · Joined: 10 Jan 2009 Posts: 7

Thaanks Brooks will go and have a look

Geebee · Joined: 05 Feb 2009 Posts: 14

Hi from another Aussie (48 years old) damaged by Statins, mine was a tad different to the normal issues in that I only had a small amount of pain.
My main problems were extreme chronic fatigue like symptoms, breathing difficulties including severe cough with any exertion, brain fog, memory loss, plus all the other usual suspects.

I am now pretty much back to normal except the short term memory loss which seems to be a fixture to an extent, for me D-Ribose gave me back my life, I had been on steroids for 2 years as they gave partial relief of the symptoms but I was always up and down on them.
The D-ribose has for the last 3 months or so allowed me to go back to life before the Statins got to me (it took 13 years of taking them at ever increasing doses to do the damage) I am now back weight lifting twice a week and riding three days a week as well as catching up on 4 years of house repairs.

So if you haven't tried D-Ribose please do I take 3x5grams a day, I buy 1kg tubs from England as it is so dear locally.

The Doctors in Tasmania are absolutely useless regarding this and are in total denial of Statins having any issues, and my case will no doubt not be reported as a Statin problem.

bradadelaide45 · Joined: 10 Jan 2009 Posts: 7

thanks geebee i didi look at d-ribose some time ago and really cant remember what i done about it. I remember i had trouble finding it so may have given up as i have tried so many different things but will go and google it again. perhaps i should follow your lead and look into england for a supply