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Joined: 25 Jul 2009 Posts: 16 Location: Edmonton Alberta
Posted: Tue Jan 12, 2010 8:48 pm Post subject: Mitochondrial Diagnosis
After looking at several sites on Mitochondrial disorders I am extremely confused now..!! How can a person get a diagnosis on mitochondrial disorders if they dont know the type to look for? DOES anyone know where ( city) in Canada do they diagnose this disease? And how do they know what type? I spoke to an internal medicine specialist and he said that before he can even refer me to anyone and( he hasnt a clue as to who to refer me to anyway ) he said that he needs all of my medical records..What does he mean? he didnt elaborate as he just assumed that I knew..Does he mean all the medical records since the mitochondrail disorders began or does he mean lifetime medical records?
I am really confused!
can someone out there tell me what medical records he needs? I dont think that we have anyone in this province that have any knowledge of this mitochondrial but I am prepared to travel to get help. This looks like a 15 year excursion in ever finding the answer.
I have not been well at all lately..I have extreme sore body all pain alot of the time.. I have been tiring after noons ( unusual for me) and have to go to bed and nap now..I feel nauseated, lifeless and no energy
Gosh I miss Duanne! he would have the answers .. Does anyone have any idea as to whats going on now with me? Could cholesterol be up again?
I welcome any answers..I wished there was a doctor here on this site to answer quesitons.. Did we ever give spacedoc a good bye and thank him for the priceless research that he has given to us. Remarkable man!
How can I locate him to send him a great heavy heart good bye to the retiring from the site?
I miss him..
If anyone canadian can offer any help please its all welcomed. I dont have the energy nor time to read all the peoples remarks and stories here..I need true facts and these people arent doctors
Joined: 28 Nov 2007 Posts: 462 Location: granbury, texas
Posted: Tue Jan 12, 2010 10:32 pm Post subject:
try chronic fatigue syndrome: it may not be your final diagnosis but is a mitochondrial disorder and so many of the symptoms fit...see doctors in alberta listing this in their specialties below
Primary signs and symptoms
Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:
■Loss of memory or concentration
■Painful and mildly enlarged lymph nodes in your neck or armpits
■Unexplained muscle pain
■Pain that moves from one joint to another without swelling or redness
■Headache of a new type, pattern or severity
■Extreme exhaustion lasting more than 24 hours after physical or mental exercise
Additional signs and symptoms
In addition, people with chronic fatigue syndrome have reported other various signs and symptoms that aren't part of the official definition. These include:
■Allergies or sensitivities to foods, alcohol, odors, chemicals, medications or noise
■Dizziness, balance problems or fainting
■Chills and night sweats
■Psychological problems, such as depression, irritability, anxiety disorders and panic attacks
■Shortness of breath
■Visual disturbances, such as blurring, sensitivity to light, eye pain and dry eyes
■Weight loss or gain
If you have chronic fatigue syndrome, your symptoms may peak and become stable early on, and then come and go over time. Some people go on to recover completely, while others grow progressively worse.
Doctors in alberta
Bruce Hoffman MD
The Hoffman Centre for Integrative Medicine
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